Caring for someone with Alzheimer's, Parkinson's or another neurodegenerative disease is like witnessing a gradual and constant farewell. Each day can bring new losses - of memory, of abilities, of the person we knew. This path is particularly difficult because grief is not a single moment, but a continuous process that repeats with each new loss. Here you will find the specialized support you need to navigate this demanding reality.
CAREGIVER SUPPORT
Neurodegenerative diseases affect the brain progressively, changing personality, abilities, and the relationship we had with the ill person. This creates a unique situation of prolonged anticipatory grief, where the caregiver gradually loses the loved person while they are still physically present. It is normal to feel confusion, deep sadness, helplessness, and even relief when care becomes too much. All of this is part of the experience and deserves to be recognized.
The care of people with dementia or other neurodegenerative diseases has one of the highest burnout rates of all forms of caregiving. The constant stress, changing behaviors, repetitive questions, and watching someone we love become a stranger are immense emotional burdens. Seeking support is not optional for maintaining mental health, it is essential. Caregivers who receive support can offer more patient and higher quality care.
We accompany you with specialized therapists who specifically understand the dynamics of neurodegenerative diseases. We know the strategies for communicating with people with dementia, for managing anxiety and agitation, and for helping you process the continuous grief that accompanies this illness. We work so you can find moments of peace and connection, even amid difficulties, and so you can care for yourself while caring for others.
Understand the disease and its emotional impact
Learn about how neurodegenerative diseases affect the brain and behavior, so you can separate the disease from the person. Understanding why certain things happen - why they repeat questions, why they are aggressive, why they don't recognize you - can reduce frustration and help you respond with more compassion and less stress.
Techniques for communicating with dementia
Practical tools specifically for communicating effectively with someone who has memory, language, or comprehension problems. You will learn strategies to reduce the ill person's anxiety, manage moments of agitation, and maintain emotional connection even when words fail.
Management of continuous and anticipatory grief
Tools to face the unique grief of neurodegenerative diseases - that which repeats with each new loss of ability. You will learn to honor sadness while continuing to live, to find meaning in the present, and to prepare emotionally for the future without missing the current moment with your loved one.
Essential boundaries and self-care
Discover how to set absolutely necessary boundaries when care is 24/7. You will learn to identify when you need professional respite, how to ask family for help without feeling guilty, and why caring for yourself is not selfish but essential for the sustainability of care.
Preparation for future decisions
Support for facing difficult decisions about care homes, palliative care, or end of life. We work so you can make these decisions from calm and knowledge, not from guilt or pressure, and so you can find peace with whatever decisions you must make.
"When my father started not recognizing me, I felt a pain I didn't know existed. Therapy helped me understand we could still have connection, even if it was different. That saved my life."
Laura, cares for her father with Alzheimer's for 4 years
"I spent years feeling guilty for wanting a care home. Therapy made me understand that asking for help wasn't abandoning her, but ensuring we both had the best possible quality of life. It wasn't easy, but it was right."
Pere, cared for his mother with dementia until her death
Start your journey towards emotional support that understands the complexity of what you are experiencing.
Absolutely. Anticipatory grief - the sadness for losses before the person dies - is extremely common in caregivers of neurodegenerative diseases. You are losing the person you knew little by little, and that is profoundly painful. Your feelings are valid and deserve to be recognized.
There are specific techniques that can help: speaking more slowly, using eye contact and affectionate touch, connecting with emotions rather than facts, and joining their world instead of trying to pull them out of it. Therapy will give you practical tools adapted to the specific stage of the disease.
This is one of the most difficult decisions. Signs that it may be time include: safety risk for the person or for you, severe physical or emotional exhaustion, deterioration of your own health, or medical needs you cannot meet. Therapy can help you process these feelings and make the best decision for everyone.
Yes, and it doesn't make you a bad person. After years of intensive caregiving and watching someone you love suffer, relief that their suffering has ended is normal and understandable. It is also compatible with profound sadness for the loss. Both things can coexist.
Take the first step today. We are here to accompany you on this very difficult journey.